Welcome to The Sweet and The Salty. So glad you are here!
If you have not had a chance to meet me yet you can do that here. You can meet Champion, my miracle in the making here.
Before you get started here I’d like to share with you the purpose of this blog, what you’ll find here, and why it’s The Sweet and The Salty.
Purpose of this blog…
I started this blog to share our story, to connect with other parents, and to share tips I have learned along the way. One of my greatest sources of education on being a mom to a child with special needs has been through the lessons and stories shared by other parents. I have been so grateful for others transparency and willingness to connect and share and want to follow in their example. I love connecting with others, special needs parents or not, and think blogging is a good way to do that.
What you will find here…
In addition to the sweet and salty moments of this journey, this blog also contains practical tips for time management and organizing. A few things I wasn’t the best at prior to Champion’s birth, but things I quickly realized I needed to have in order as a mom to a child with special needs.
You will also find a section dedicated to inspiration. This section contains links to stories, poems, or posts I have come across that have inspired me in the times when I needed it most and I hope they do the same for you. My purpose of the inspiration section is for it be a one stop place to go when you may be feeling discouraged and need a little reminder of the amazingness that happens in the lives of children with special needs and that you are not alone.
Last but not least, you will find a section dedicated to prayer. This journey has torn apart my faith in God and rebuilt it from the ground up to be stronger than ever. Prayer has been a staple in our home and has kept us together during tough times, kept us hoping for the best, and keeps us continually praying for and seeing miracles in Champion. Please visit this section for additional resources and to submit prayer requests. (coming soon…)
Why The Sweet and The Salty…
This blog is our journey. You will read about the sweet moments I experience with Champion. These are the moments when he achieves a milestone we were told is impossible, when he looks at me with complete adoration in his eyes and wordlessly communicates that he loves me. The moments when he squeals and laughs in absolute delight. The moments when he continues to amaze us with his tenacity and zeal for life. These sweet moments include major victories in his life as well as the quiet intimate moments shared between mother and son.
You will also read about the salty moments of this journey we are on. These are the moments of discouragement, frustration, and heartache. These moments are marked by tears, anger, and sadness. These are the moments where I wrestle with isolation and depression. These are moments when I feel the weight of Champion’s world on my shoulders. These are the moments where my faith is truly tested. These are some of the toughest moments I have experienced, yet are also the moments that I have grown the most in.
Thank you so much for coming on by! I truly hope you enjoy your time here.
Can’t wait to hear all your sweet moments. I know there will be many b/c you have God in your life. He only give us what we can bear and puts us in challenge positions to grow us. Such a strong woman for blogging about the good and the bad. That takes a lot of strength to put yourself out there. I know this blog will be useful for many people out there who are going through this and inspirational for those who aren’t. God Bless you and your family.
Much Love,
Tea Todd
Thank you very much for the encouragement 🙂
Hello, it’s nice to meet you and your son. I have never heard of Miller Dieker Syndrome so I’m going to look around and find out more. Champion is a cutie and it sounds like he is a happy, spunky little guy!
Thanks for coming on by! Champion is quite happy and spunky! He continues to surprise us regularly as his personality emerges more. Thank you so much for taking the time to learn more about Miller Dieker Syndrome. It is quite rare and we have definitely been blessed with a very unique gift in Champion 🙂
Hello there!
First of all, I wanted to say how adorable Champion is! We are on the Miller-Dieker journey as well. My daughter, Ashley, turns six in March! Secondly….and FINALLY…..someone who has the courage to say “it is not easy!” The sleep deprivation for the first four years, almost sent me over the edge! Without proper sleep, everything else ha a snowball effect. I’m happy to say, year five has been better and we hope it continues! I look forward in getting to know you and your family 🙂
Hi Rhonda,
I can’t believe I missed this comment somehow. How are you all doing on your journey now? it’s been quite awhile since you left this. Yes the sleep deprivation I think is the thing that gets me the most. I am hoping it will soon get better here. Thank you so much for reaching out and sharing about your daughter!